Resting with his bear after extubation!Demetri has had a rough couple of days. After being extubated on Tuesday, he started getting feedings through his new G tube in the afternoon. They increased his feedings fast and reached full feedings (30 ml) by 2 am Wednesday morning. After two of these full feedings the problems started. He stopped digesting the food and his bowels stopped moving. He started oozing blood and fluid out of one of the incisons. So they stopped his feedings and tried to figure out why he was so uncomfortable and oozing. He had to get alot more pain medication and blood transfusions (because he was anemic). This increase in pains medication led to other problems, his heart rate and respiratory rate both dropped. He did start getting oxygen through a nasal cannula soon after being extubated in order to help to stimulate him to breathe.
Momma finally getting to hold Demetri!On Thursday, things started to take a turn for the better. He was finally able to relax and rest more comfortably. He was kept on IV fluids for the day to let his stomach rest. He gradually started to appear more and more comfortable. In the afternoon he had a couple of apneic events so they decreased the amount of pain medication he was getting. He gratefully had a good night and this morning (Friday) he was awake and moving around when we came into his room. He looked so much better than he had in the past few days. This afternoon he started to get small feedings again through his G tube. He has continued to have occasional problems with apnea so they stopped his continuous pain medication and will just give it to him if he needs it. Hopefully these events will stop now. They also removed his nasal cannula. The plan is to slowly increase his feedings this time and without any other problems he will hopefully get to come home within the next couple of weeks.
As far as Eleni, today was her last day of school and she had a little party at school and then we took her to Deanna Rose Farmstead to feed the goats and milk the cow. We also found out that she talks about Demetri to everyone at school. We don't know exactly what she is saying, but she appears to be excited about her baby brother.
Thanks for the update, I am glad Demetri seems to be improving. We are thinking and praying for Demetri to heal, and for you and Chris to keep going strong, hopefully the next two weeks will fly by and you can all be at home together. Tara
ReplyDeleteSorry you've had a rough patch, I think about you all the time. Eleni looks a lot like you, Kristen, in that photo! Once things have settled down some, could I take Eleni to Deanna Rose with my kiddos? They love it there.
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