Demetri gained 20 grams today, so with yesterday's loss he now weighs 1239 grams which is almost 2 lbs 12 oz. He had a much better day today relative to the past few days. He did not have any apnea events and they even removed his oxygen. He seems to be tolerating this change just fine, but we will have to wait and see if needs it again. He got his first daily dose of Caffeine today and this could be helping him not to need the oxygen.Some test results have come in, but we are still waiting for more. The EEG did not show any seizure activity and his RSV test was negative. He had a cardiac echo last night that confirmed the presence of a bicuspid aortic valve, an ASD (a tiny hole between the left and right atria), and left pulmonary artery stenosis (this can be a normal variant but we will just have to watch it). They were not able to track down the genetic test kits from California, so we are hoping that tomorrow the blood for the chromosome study will finally get sent off.
Tomorrow will be a busy day for us. Eleni will be getting tubes in her ears and her adenoids removed. This will require a delicate balance between NICU time and surgery/recovery duties with big sister.
Hope Eleni does well tomorrow!!!! Should be a treat, maybe ice cream from the cow store! We pray daily for Demetri and read about him everyday. Nana keeps us up to date as we are trying not to bombard you with calls as I know time is little as it is. Just know that we think about you daily and cannot wait to see you guys. We love you lots.....Derek, Shannon and Lily
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